What it’s like to be different

So, right now we have it easier than a lot of parents. But we also have it different.

Watching my friends struggle through the rigours of home learning these last few months, often holding down full time work, I have been in awe. It is an unfathomable situation for many and I have written before about how much I admire my friends going through this pandemic. The education expectations have been heightened this time so there has been even less chance than last year to take time for yourself. And so in many ways we have been lucky, our son has gone to school so that he can have his routine and a differentiated curriculum. He also needs extra support like OT and Speech and Language which school have to make best efforts to fulfil under the terms of the EHCP.

We had our own mini-experience of the challenges of home learning in lockdown three. We had to coax our son through remote school during our ten days isolation. This included me sitting on the end of the sofa in a mask or shouting from my isolation bedroom to get him to engage. Obviously my husband did the lion’s share (I was ill with covid).I was amazed that we actually managed any of the tasks set. Like lots of children, he has zero motivation and two baffled parents trying to explain a curriculum that looks nothing like anything we ever learnt. So we did what we could and rewarded any effort with the iPad. He wasn’t too fussed about staying in all that time but I was very ready for the routine (and sleep that come with it) to return.

We are really privileged to get the help we need. Amongst all those people struggling to educate their children at home are many children with disabilities and special needs who don’t meet the criteria of going into school or cannot because of health risks. Special Needs Jungle reported recently on the number of children who have their “Provision Denied” in the current circumstances. Without specific actions to address this, their research suggests there may be even greater gaps in learning for these children. As such I feel a real marked difference from many of the parents I know, whether parents of children with special needs, or parents of neurotypical children.

Because he needs something different, we also happen to experience the world a little differently. There are sometimes little shocks like when I hear babies babbling. I didn’t know until much later that my son didn’t babble. He is a talkative fellow now, he just needed some extra support to chatter away to us. At times there are slights which sting, friends will listen to me talk about challenging behaviour and compare my son to their much younger child. Although I too will find it helpful to see a rough picture of child development and (ignoring the age categories), celebrate that he has reached a milestone of new behaviour. He became an appallingly bad liar recently which I am secretly celebrating as a major stage of social understanding that is completely new for us!

Photo by Quintin Gellar on Pexels.com

I don’t mean to compare my life to others, and especially not to people’s highlight reel on social media. But I share these experiences to explain that we are on a different path. It is a country road we are taking. Not even necessarily slower to get to the same spot. If you happen to be stuck in traffic on the motorway, (for example when you are unwillingly home-schooling your child and I am not,) our car may get somewhere quicker. We may even end up in the same places sometimes (for example our son may end up in a job or at university the same as any other children I know). But we are not travelling there the same way. and the picnic I packed is a little different.

This experience of feeling a little different, reminds me of what my son might feel at times. He is not really sure why he goes to school at the moment, for example. Difference can feel isolating at times. But part of my lesson about acceptance is what I see in children in his class all the time. True inclusion in society is not ignoring that there is diversity in experience, but acceptance that not everyone goes about things the same way and just getting on with the journey that you have to take.

Are you counting down until your children go back to school or will you really miss the fun you’ve been having?

There is good

At the end of every episode of the podcast deep dive into the Good Place, Marc Evan Jackson says “Go do something good.” The melliferous tones are a joy to listen to and somehow this phrase has been an ear worm for me in the last few weeks.

Whether it’s the rainbows or how everyone is considerately moving about the streets around each other, I am seeing more good in the world than ever. We have banded together in a mutual aid group in our neighbourhood although so far this has just been donating a bit of food, I feel closer to the community than I ever have since moving here four years ago. We talk to our neighbours and my son, who is very social but struggles to engage well, is having nice chats with our neighbour most days while he fixes up his car.

And in amongst this joy, sadness too of course, and fear. The emotional rollercoaster seems to be the only thing we can certain of at the moment. Coronacoaster I believe you call it. But we are handling it.

Elizabeth Gilbert was also on the Ted Talks podcast which was a brilliant salve in testing times

I sent my friends this quote from Elizabeth Gilbert because I have so much admiration for everyone’s ride on their own coaster. I look at what they are going through and marvel at how they have “handled it”.

The friend whose going back to work as a teacher, scared because its simply impossible to space out 15 kids in a small classroom. And whose job has changed over and over in the last few weeks. She may have no choice but to send her child to nursery though he is too young to stay away from others. She is battling with fear but handling it. She’s doing something good.

The friend encouraging her young child to go back to school so she doesn’t miss those final few days with her friends before the transition to high school. Her daughter is scared that it will be different and she is holding her hand through this while also working her full time job. She’s doing something good.

The friend working very hard all day but getting deep joy from popping down for a cup of tea and seeing her children more than usual. Getting through her to-do-list now she hasn’t got a long commute. She’s handling it. She’s doing something good.

Another who has to work full time with her husband out at his essential role but is keeping her kids out of school for the moment. Unsure that things are safe at school, she works with her son at her feet. She’s doing something good too.

Through all the earlier mornings, the homework fights, the million snacks, the technology battles- we have mothered on. Through all the video chats with family, baking cakes, playing outside and extra cuddles, we have mothered on.

So, if you are mothering on (or maybe muddling on,) then well done! Because you’re doing something good too.

Writing With a Distracted Mind

If you are finding it hard to be productive, you’re not the only one…

You know how if you had all that time, you’d write your novel? How’s that working for you? Ha! If you’re like me then your distracted mind is struggling. I think it’s clear from my posts in the past that I don’t do great creative work when life is too much. And it’s all a bit too much for me at the moment

We are in the lucky position of still having work that we are trying hard to do at home with our son alongside. A privilege because even as a keyworker, I am not on the front line and a relief because we don’t have quite the worries that other people have around finances. So believe me, I am thinking about others in a lot worse positions than us when I write this. All this extra time at home and I am still too distracted to write.

Not me but…mood.

It’s frustrating. But this time in isolation is unique in its character. I am on an emotional rollercoaster. Right now, blogging on my phone while my son is on the laptop I am enjoying sitting about in comfy clothes. No school run stress. No demand to dry my hair then pick if I do makeup or eat breakfast today because I didn’t leave time for both. (That’s my usual week day) So I am even feeling good enough to write. But later I might try and read and manage two pages before I want to nap.

In this hour by hour existence, I have been thinking about my son’s mind. His neurodiversity means his attention can be very short if he isn’t motivated. And anything remotely schooly for him has to be of interest to engage him, particularly if he finds it hard to do something. The thing that his dyspraxia and attention make it hardest for him to do: writing. The physical act of writing is very complicated. He gets intense support for this at school. It takes time. And he’s got to be interested.

It is not without irony I realise that I am battling to help him do any writing while school is closed. And I think looking at his highly distracted mind can teach me something about how to approach any work I can do while this is our reality.

How to Help Your Distracted Mind Write (or A Seven-Year-Old Learn)

  1. Keep it short. Don’t expect to stay on topic a long time. I have been using a free Skillshare login to do some courses and quick writing exercises. This has led to a short story. Maybe this isn’t the time for long form! Don’t expect too much of yourself.
  2. Make it interesting: while I won’t pretend to be reading a lot, I have been indulging my obsessions in audiobooks and podcasts. Just as my son has been indulging his Minecraft interest, I have been enjoying tales of antiquity. Mythos by Stephen Fry and podcasts such as Myths and Legends. These stories are short and inspiring. And delving into something that really interests you may keep your mind engaged a little longer.
  3. Use time limits. Often it doesn’t feel like you have done much if you have only sat for 10 minutes. But you have to accept if you have done that, you have achieved something. A time limit is a great way to remind yourself to do nothing else in that time. And I have surprised myself with what we have achieved in a short time.
  4. Use a task list. My son gets stressed by timers as he has to watch it count down. We use a list of three tasks he has to achieve instead. This is also a good way to approach work, for me it’s about polishing some work with a few questions in mind: get information across, let the characters move forward, leave early enough. These are all things I learnt in writing classes that I can tick off when I revise work. And an achievable set of tasks to do with maybe a scene or a story.
  5. Reward any effort. You might be giving yourself more treats anyway but the thing that keeps me motivated might also be a little sit in the backyard. It doesn’t have to be much but if you did anything towards some writing you need to do, reward yourself!

So these are my distracted thoughts on getting work done...how have you been managing to write?

Battle on

When all else fails, battle on. A bad day? A bad month? Or all merged into a steaming heap that you cannot divide up into good or bad, just a pile that’s been dumped right on top of you. Then you battle on.

The battle pales into insignificance to other wars being fought elsewhere, I know that, but still, here in my life, this is a fight. A fight for my son and his needs to be heard. A fight too for keeping my head above water, juggling my responsibilities with the extra workload of paperwork. And of course it’s not just the actual paperwork but the emotional load of it all.

I learnt back in November when we were going through the EHCP draft stage that the emotional toll took a lot out of me. The process should be over by now but they have not listened so we are waiting to mediate. Up and down the country families are going through this stage or taking the Local Authority to court. And why? There is not enough money nor enough places to meet the needs of our children. There’s a full on #SENDcrisis. Meanwhile newspapers are reporting that schools are taking “your” children’s funding to plug the gap. This discriminatory writing where we are set up them vs. us is so toxic and the fight feels so much bigger than just our family.

All of this does not make a great creative space. Knowing how tough the end of last year was, I have been more prepared to take it easy on myself. Instead I have been escaping to baths and books. And some read some amazing writing this month.

The Confessions of Frannie Langton is such a brilliant novel. Recounting the tale of the end of slavery and the pseudo-science of eugenics, the full horrors that Frannie experiences unravel through the tale she tells. We learn how she ends up in prison, her life in the hands of a system always going to beat her down. It is a compelling novel and I loved that we really get to hear her voice.

Inspired by the prison setting, I started Alias Grace this weekend. Another fascinating novel that reads too as a murder mystery.  So far I am loving it. Shame my son just took my bookmark out!

Obviously there are many ways in we can distract ourselves from our real life problems. But for me, a book will always be the best place to escape.

Finding the right way to unwind…

So this was the year I stopped drinking and forgot to tell anyone

It struck me after a supremely stressful week that quite a few people around me suggested I treat myself to a large glass of wine. Not unusual advice. How many memes, tshirts and mugs are there about mothers needing wine or gin? But what they don’t know: this was the year I stopped drinking. Well, I had two drinks in total and may have a tipple or not at Christmas…

Giving up was not a big deal for me. I am lucky that I don’t have an issue with addiction though I have been around it. Saying no up was just a case of stopping when I didn’t fancy the side effects anymore. I know it was the right thing because earlier this week I had a two day hangover from having one small drink. Somehow though kind friends, who haven’t noticed my lifestyle change, thought I had really earned a drink this weekend after a tough week. But I am happy that I decided against it though I really needed to unwind.

You see, this time last year I had a few social occassions (this is rare, I have little opportunity and very few childcare options). Being the fun mum I am I took it way too far and drank too much on those nights out. I got migraine level hangovers (bad), flushed skin like hives (awful) and a debilitating bout of anxiety (the worst.) So, with actually very little soul-searching, I decided to stop drinking.

It bothered very few people. Afterall, I don’t go out that much anyway. A few older relatives were a little put out. I can’t decide if it’s because they were hopeful I was pregnant (ha) or they just felt judged. Most friends who do know though haven’t given a hoot. Apparently I am not alone, Millenials (I’m almost that young!) are also give up drinking or “Dragged down alcohol sales” as Business Insider put it in an article earlier this year.

According to them, this is a side effect of a surveillance culture because any indiscretion is immediately online. As I say, I don’t go out enough to really humiliate myself but I still realised this year I needed a change. For me, living with the consequences of a drink has been too much. Because the “hang-xiety” isn’t the only reason it takes me to a dark place. I think we often ignore the depressant factor in alcohol in order to enjoy being less inhibited. I am writing about a protagonist at the moment who is really not good at parties. Her awkwardness like many around her is only overcome by drinking copious glasses of wine. I mean, I may have given it up but I can still imagine myself in this position. But weighing it up, I can cope better this way.

This is not to say, of course, that anyone out there who uses wine to unwind is an alcoholic nor that anyone doesn’t have a right to use whatever they like in the name of self-care. Afterall, I have the book Hurrah for Gin in my kitchen to turn to after a hard day of motherhood. However, for me, this year has been giving self-care a bit of a makeover.

It is all about finding what works for you, for me, escaping to books is great. I have on a number occassions this year camped out in my bedroom whilst my husband entertains my son. And it is an escape that sometimes you need. I have also done much more swimming. So reminding myself of this, after a stressful week, I have turned to these two things over alcohol to unwind.

All this is to say, handling anxiety is more important than if I feel awkward at parties or don’t have an easy way to unwind. So for me, I’ll pass on the continuous memes and the wine for now.